http://cystic-fibrosis.supportgroups.com/
This is an online support group forum where people can come and post their struggles, questions, or victories related to their disease, as well as read and respond to other people's posts. This is a great option for people to see that people all around the world are experiencing the same thing they are - not just people in their own backyard. It is also a great option for people who have limited mobility to connect with others. When a person is very sick with CF, it can be hard to get the energy to come to meetings that meet weekly, biweekly, etc. The advantage of this online support group is that they don't even have to leave the house!
https://www.cff.org/oregon/
This is the Oregon chapter of the official Cystic Fibrosis Foundation. It is centered in Portland which is ideal for CF patients in the Newberg area. This support group is excellent in their outreach programs with numerous fundraisers including Bob Gilder Platt's Golf Challenge, Portland Firefighter Starclimb, and Brewing up a Cure. Not only is this effective in raising funds towards research of the disease, but it also establishes a sense of community support towards those with the disease. The downfalls is that it is less focused on emotional support.
Ideally, a support system includes both emotional and community support. For a person with CF to gain the most benefits, I would recommend involvement in both types of support groups. I would also recommend for family members to get involved in support groups because they too are living with the disease, in a way.
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